Dear John,

Dried flowers hang above floating books while fresh ruby sunflowers dress the space below. Coffee wafts in the air from a candle I lit while cleaning as I dance and sing along to my current playlist. For a moment I forget about the stresses in my life that climb onto my back like a live action caricature. I haven’t developed some new tactic to control the fear and darkness flowing through me but rather I found something worth much more than surviving simply with masking or restructuring who I am for the rest of the world. I found the one who makes me believe in magic, the way I did before the universe beat me down. I may struggle and panic myself into another galaxy but I feel safe when you’re near. To fight my demons, to dream, to hope and to love. So fuck you for that, but also thank you.

P.S. Does this count as writing?

listening to Tenacious D from The Croods a new age

Risk adverse

She hid away once again as the pain was far too great to bare and though she longed to feel joy, it made her skin itch and her bones ache. Her scars continued to bleed, drowning her hopes and fears. She began to fade into the warm comfort of darkness because her gift was for others and they craved it but each time it killed another piece of her and would continue to do so until she was merely ash and memories. She wondered if then the evil in her nightmares would finally set her free. 

Starting over… again

I am about to get real honest with my little ‘summary of the last year’ as I start over… again.

I didn’t go to my graduation. I couldn’t afford the regalia. I regret it a little now, not being able to walk across the stage and have my hard work acknowledged because it truly was grueling. My GPA dropped below the 3.7 I had held throughout my 3 years at university, after the incident. Yet, I managed to finish my bachelors degree. Even through the interrogations from my now ex, boyfriend. I felt unsafe. Around others, alone, out in public and even in my own home. I was terrified of people but especially any male friends.
“What were you wearing?”
“How drunk were you?”
“Are you sure you told him he couldn’t stay there?”
“Are you sure nothing happened?”
Others were shocked and asked, “are you sure you’re not interrupting the situation wrong?” Adding, “that doesn’t sound like him.”
I stopped writing. Turned down acting jobs. I didn’t apply to the nursing program after completing my psychology degree with a minor in public health and all of the prerequisites required, even though that was the plan I had been working toward for years. I felt unsafe, unheard, ignored and the normal feeling of “are you over this yet” leeching off of people was suffocating. Over a decade of therapy, 4+ years of trauma therapy dealing with my bipolar, CPTSD, ADHD, anxiety and severe depression. There I was in another hole like trash trying to fight to get out of it. I’ve cut many people out of my life. People I cared deeply about knowing I will never be anything more than a survivor if I don’t drastically change my life. I know I take some things to extremes to avoid plausible risks and I also know that I have allowed some behavior because I was worried that I was overreacting or just reacting to an extreme. My plans to create a better future for my son were unravel by my own hand and a missed threat assessment and plainly, poor character judgment sandwiched between all the stress from my overflowing plate. Nobody is perfect so just be honest and real. Fuck people’s potential. Fuck my potential. Just be who you are.
I will keep working on how to trust again, mostly I mean myself. Which reactions are good instincts versus those that are a trauma response. Until then, I’m not available. To anyone, for anything. Those I chose to be in my life, are. There is no confusion. Everyone else, Godspeed, I hope you’re healthy and happy. Don’t contact me. I need to heal. I need to feel safe. If that wasn’t fucking apparent by now.

Still here

One of the worst parts of having CPTSD is knowing a conversation is too much, being incapable of saying that and just experiencing it like an extension of trauma. All while going through therapy to deal with whatever trauma caused the shit in the first place. All while loud sounds have you jumping out of your skin. People who thought you knew they were walking up to, seem to suddenly appear before your eyes, startling every fiber of your being. Your memory is blank for so much of your past that you clutch on to random memories trying to find yourself lost in the matrix. Then there are the nightmares, which fight through your ambien because the one thing you need is rest, to feel safe, to unclench every muscle in your body and breathe for more than just survival, but not tonight because they scream. They scream twisted versions of everything you’ve survived, every night. Everything you might have to survive in the future. 

And disassociating, is somehow the worst of all. You’re not present for the trauma (incident/s,) maybe you remember or maybe you don’t. Maybe you just remember the stories of it, or rather the stories told to you. But the guilt. The consequences, of whatever may have happened during the time you disassociated, they live on, they replay, fester and torture. 

And all of that makes being bipolar look like a walk in the park. Because hell, it’s just a handful of manic days where you have a really good time being yourself and everyone thinks you’re amazing and a long string of depression filling up the space in between. The ADHD, is simple and barely worth mentioning. With no ability to focus and the constant dread of being overwhelmed while simultaneously bored, because you just go really fast in your head while your body remains cocooned in a blanket like a hostage negotiating burrito blanket.  And when you sandwich all of that together, you get me. A walking, talking disorder pamphlet just trying to get through the day without blowing up her own life or anyone else’s. Pretty, smart, talented are an irrelevant bonus feature. Survivors  are just victims who are still here. 

Aunt Flow

Experiencing a menstrual cycle is basically like, a bunch of teenage demons are trying to do a seance to steal your “life creating” magic. Because it feels like gravity is trying to drag your uterus down to hell. But, with a blood sacrifice, you get to keep it! And those pesky demons have to wait a month to try again. Every month for years until they finally lose and for winning this battle you get to experience “the final period” with hell fire hot flashes and more. 

vulnerability – lack of control – trust – love

I always walk into the face of danger, into the chaos and any other storm many may shy away from with an unbreakable fearless strength. I dare it to test me, I’m ready to fight and do whatever it takes to defeat it; to defend others and even more so if they are the ones I care for. To protect those I love, those who will not stand up for themselves and those who do not feel worthy of that sort of love and kindness seems as interchangeable as the blood in my veins as it pulses behind the skin wrapped around this damn meat suit I’m trapped in, inside of this shell they all claim to admire or even love.

Chaos is simple. The storm and the fight is simple. This is where I feel the most alive. This is where I feel whole. The thunder in me beats like a drum and I thrive and move with its rhythm. It is where I feel worthy.

It ends there. It has always been a struggle to hold the same sort of savior complex it seems I bare for others; when it comes to my own heart, soul and mind. I’m not even sure when or why I decided I was unworthy of such decency. Truthfully, that is what it boils down to isn’t it? Compassion and human decency on your worst of days, the days where your true character is challenged and all you are and have been taught what you are worth comes to light like a supernova, and everyone’s perception of the event is clouded by their own experiences, including your own.

Continuously plagued by nightmares and I still can’t understand how my own brain is capable of putting me through such terror, nearly every night. Reliving traumas that some nights I can no longer tell if they have even happened in real life or if they are only wicked fantasy horror’s far worse than most could even imagine I have thrusted upon myself as some sort of penance for still existing. Often wondering where the line of horrible truths and the relentless combination of horrifying theatrics and creative viscous genius; actually lies.

In the day, I am always fighting for a better a future for my son and for that to include me in his life as someone worthy of that extraordinary imagined existence. Each morning I wake I fight for my right to love and be loved and setting goals to earn such love by being better in all aspects of my life. Yet, I fear I am not fighting for it in a way that shows I believe I truly deserve it. Deserve love, peace and even joy. The words I recognize and the rational part of my brain knows I do, cause fuck, we all do. We all deserve so much more than we ever give ourselves credit for. I don’t know how to believe I do. To truly believe it and feel it when in the depths of me this poison has taken hold of me over the years. Seeping in slowly and steadily, in the shadows of all of my best intentions and valiant failed efforts.

So, why does this nagging cruelty nag at me that I am meant to suffer and to endure for the rest of my days? Why is being vulnerable the fasted to trip to numb or dissociation without a moment to correct this ridiculous notion thrust upon me? Why does the lack of control drive the deepest anxiety I have ever felt in the marrow of my bones where I swear I will drown in it and feel as if I am drowning regardless? I am often asked to trust only as swiftly as I am reminded not to. Then there is love, if and when I feel what I associate the feeling of love it is accompanied by a nagging question of is this a risk worth taking? Am I even capable of breathing in love and all the good reaching toward me from it knowing all the while a million fragmented images play behind my eyes like some sort of madness of all the ways every situation could go drastically wrong if I succumb and relinquish control, trust, exhale, try and allow myself to feel love?

Someday I hope the thought of being vulnerable isn’t quite so exceptionally painful. That the word control, is associated more with driving a car or a single turn playing a board game than this intricate woven waking nightmare of reality where every molecule of surviving this life is what life is. Someday where the idea of love shoots a calming recognizable warmth throughout my cold clenched vessel, filling me with peace, happiness and relentless joy. Where the idea of trust isn’t a trigger but rather a matter of fact welcomed component of my life. Where life is about balance and not about preparing and accepting the worst but truly allowing myself to hope for the best and maybe accepting days will be good and bad and how it goes is about how I react to it rather than some cosmic retribution.

Fear is a powerful force.

Be kind to others and please be kind to yourself.

Hindsight and Peace

Talking about my past with a nonchalant viewpoint is either proof I have moved beyond my past or that I have buried it so deeply into the depths of my being from the realization it doesn’t serve me to dwell. There comes these defining moments in your life where you have to make seemingly hard decisions (at the time) about the future, about your own future and about what you are willing to accept and what you are not. Whether you are willing to suffer or to hurt someone else. When I started to look at things in the perspective of “does this serve me?” and “is this the person I am?” or “is this the person I want to be?” as well as, “Is this what I deserve?” Everything changed as I imagined who I am, how far I’ve come, who I wanted to be and admitted to myself I do deserve more out of life than the sentence I gave myself so many years ago. When your mistakes haunt you past the point of forgiveness because you in fact do not forgive yourself, is it the price you deserve to pay or is it as simple as you not believing you deserve more? Making mistakes is a natural part of being human but I have found when you find your people, find someone you care deeply for, even love beyond your own normal comprehension; and they forgive you for something you deem unforgivable, well it is far more difficult to accept. Far more than any suffering I have endured and far more than I had ever imagined was even possible.
I have busted my ass for years working toward a better future, for myself and my son. To be worthy of that sort of forgiveness and to return that to those that have wronged me. I find myself more mentally, physically and emotionally stable and continuing to work hard in all aspects as we all are works of art in progress. I’ll admit it’s been a shit show of hard work folks but I am getting through it and isn’t that the point? We can all get through our struggle and face anything if we can find a way to believe in ourselves a little more. It’s important I see how far I have climbed from the belly of the beast that tried to consume me, feeding on my darkness. Each day I take a little more effort into believing I deserve more and sometimes I say it out loud and cringe in disbelief. Each time I say it, though I know it has begun to break the walls I erected around me a little more each day, I feel the cringe as my body clenches in the muscle memory scream of “No!” Each day it turns the volume down a fraction, the strength behind the response is less severe and releases me sooner. I put these walls up to protect myself from outside forces because I had learned that people break your trust, break your heart and break you. That particular venom that spreads and festers begins with trust, hope and love. Sure, being the one who loves a little less than the other protects you when things crumble to the ground but when starting anything with this sort of foundation it becomes a self-fulling prophecy of “see I told you” when things crash or burn or on the bad days when it feels as if everything is and will go wrong. In the end being right does not result in wining, in happiness or becoming the best version of yourself. You can’t really be a part of something magical if you’ve got your heart on the safety eject button. There has been too much pain in my life that I have experienced and witnessed in more fashions than I would care to admit and have felt in ways I wish I had not that I can truly understand anyone unwilling to be vulnerable enough to surpass those fears because hell, I am terrified of that. Sometimes I even think I am incapable of it. Anytime a true feeling emerges from me it feels as if every cell in my body treats it as an infection it needs to fight and it goes to damn war. I used to revel in the idea of being a jaded, cynical pessimist. It’s not that I feel its an entirely mistaken point of view but rather closed minded, a view of someone who from experience has been hurt. It’s one sided and the universe is nothing if not in a constant battle of balance always working toward some version of harmony. In those terms I can relate, as I had always felt the struggle to balance those parts of me at war. As I experienced joy and happiness a flicker of terror surfaced instantly just below my skin with warning of pain and hollowness that will infect me when whatever it is that is making me feel, is gone. Feelings are contagious terrifying lapses in judgment. As much as my rational mind knows it’s not true, some days thats more difficult to remind myself than others. Feelings ache in my muscles and joints, burn my skin, swarm in my mind, revoke my sleep and plague me until I succumb to them, numb from them or allow them to consume me. As I grow older; listen and watch more versus reacting, I have found my defense mechanisms do not serve me and I’m not going to lie, this is a hard pill to swallow and even more so to change.
Here’s the thing though, I still dare to try. To risk my sanity, my heart and as terrifying as it always is there are these moments where things do actually work out. (Also terrifying btw) That is where you find yourself, where you find your connection to others, to love and to hope. To be more vulnerable is scary as fuck and a gigantic struggle for me but I will continue to try.
To live, to love, to be open to all the alternative versions you can be if only you allow yourself to be the best version of yourself and strive to better than the version of yourself yesterday, is a purpose I can stand with.

Hindsight teaches me the lessons I needed to learn and peace, it comes from letting going and learning those lessons.

Be kind to each other and be kind to yourself.

Triggers, defense mechanisms and relapse, oh my!

Psychological and emotional triggers have been a plenty in 2020. Sometimes it is hard to see the good in your life, in yourself or in other people. One of the most difficult things about my progress is how I look and seem “good”. I have survived for so long that attempting to do more than only survive has brought up an infinite amount of challenges. This year has muddied the waters on what defense mechanisms and coping mechanisms I still cling to and which I need to let go of. The eery truth is though the world basically looks like it is on fire, I am more at peace or at least closer to reaching it than I ever had been before. I am more calm in this chaos as there is a tangible reason or explanation for it, and so I am less stressed. Stress has been eating at my insides, dancing between my skin, seeping into my bones for such a long time. I still struggle with distressing and the actual concept of relaxing is still nearly impossible for me to put into practice, so much so that if I feel relaxed at all you can bet your ass, I’m passed out within seconds. I know most of my triggers and I work hard to not react to them. To not fall into my defense mechanisms and relapse. It’s my son and I against the world, or for it. You can be damn sure I will do everything in my power to give us the best life I can. A happy, peaceful life where we can be proud of who we are, love with open arms and feel safe to walk away from things and people who do not align with our needs at living a good life. The only way for my son to understand this, is to show him. Because actions or lack there of always speak louder than the sharpest or hollow words.

I am on my first break between semesters since winter break at the end of 2019 going into 2020. The worst I have been emotionally and mentally has been on this month break, the lull in my exponentially busy schedule. I have completed my first year in the mortuary science program with an overall GPA of 3.50. I was always a C student but between WSU and OCC I have from Fall 2019-Summer2020 earned; 6 A’s, 3 A-‘s, 2 B’s, 3 B+’s and 1 B-. So I suppose I am not a C student after all. I wish I could say it is because I am passionate about what I have been learning this year and for a few classes that may be true but for most, it isn’t. I suppose I didn’t realize how much I needed to be busy both physically and mentally to stabilize my mood. In the spring I began a huge project of clearing the yard for a garden. I grew from seeds and planted small starter plants and now in August, everything is lush, producing food and gorgeous flowers and looks a little like a scene from Jumanji at times. I had no idea gardening was such hard work! It is and my body and my mind absolutely have loved every second of it. I put up an above ground pool for my son (and let’s be real, for me too.) We’ve spent the summer on hammock’s, the swing set, in the dirt, in the pool, under the gazebo, bbq’ing most meals all while surrounded by fairy lights I put up along the fence, the trellis’s and some trees. It’s our little slice of summer heaven.

My son has had quite the adjustment period during this pandemic. His routines stolen, school’s closed, lack of socialization, inability to go shopping and so much more has been extremely difficult. Being able to spend so much time outside has been our greatest alley but I know another horrid Michigan winter is coming and they last often for 6 months and neither one of us likes that garbage. 

So here we are world. Learning, changing and growing like my crazy garden, together. Looking for some peace in a time of chaos and uncertainty because together we can make it through this and I know that means we can make it through anything.

Be kind to one another, we are all scared and unsure of what’s to come.


Trigger: Cause (an event or situation) to happen or exist.
Examples of Emotional Trigger: someone rejecting you, someone leaving you, someone blaming or shaming you, someone being unavailable to you, someone ignoring you or discounting you, someone being critical of you, someone too busy for you, someone trying to control you, someone being needy or trying to smother you and helplessness over painful situations.
Psychological triggers: A trigger in psychology is a stimulus such as a smell, sound or sight that triggers feelings of trauma.
Defense Mechanism: a mental process (e.g., repression or projection) initiated, typically unconsciously, to avoid conscious conflict or anxiety.
Relapse: A deterioration in someone’s state of health after a temporary improvement.
Coping mechanisms: are strategies people often use in the face of stress and/or trauma to help manage painful or difficult emotions.
Stress: a feeling of emotional or physical tension.

Rant

All I really want is some balance. Balance between much needed alone time and time spent with creative adventurous people who are still unflinchingly kind on their darkest of days.
People who make you feel safe while seemingly doing nothing at all. People who love animals, nature, books, hot summer days, time in the water, random creative outbursts, adventures, traveling, nights on the town, nights in, late night conversations, being crafty, etc. People who love to try new foods and break bread with passionate conversations (and a little bourbon or wine.) People who support other people’s dreams, who are filled with compassion and confidence in who they are. People who put other people first without expectations.
My time and energy is valuable and I’m all for spending it with like minded souls. Especially with all that has transpired in 2020 and all that has yet to come.
Enough of the energy vampires, negative lusters, refusal to change or grow people, what about me people and whatever other soul sucking mantra people feel the need to live by walking around with their blinders on because true growth, change and happiness is actually hard work you have to do yourself but sweet fucking damn the reward is everything to love yourself, your life and the people in your life. It is like living in a place filled with magic.
End of rant.
Stay safe all. Xoxo

Home Stretch

As I near the end of this semester with 5 finals looming over me, I stopped and took a moment to appreciate how far I have actually come. This year I have made huge strides in trauma therapy, though I know I still have so far to go. I FINALLY finished my associates degree this year, something I began working toward back when I duel enrolled in high school (circa 2002). My son is growing up and his personality in all its growing pains is emerging and for the most part he seems happy and is healthy. I applied, interviewed and was accepted to WSU and the mortuary science program there.
I finished the first book Jezebel, in my new series early on in the year after working on it for nearly two years and even began the second book. Two months ago I finally joined a gym again and I am even working with a personal trainer twice a week.

So I sit here before one of my last classes, attempting to study for finals, to take a break and just breathe. To remember how far I’ve come and how much I’ve survived. I’ve met so many people in the last few months and all of them seem surprised to find out I am Bipolar, have PTSD and suffer from anxiety. I wear my scars well, I’ve been told. Surviving doesn’t come without great self sacrifice. I have buried myself in my studies, my son and often Netflix and its time to live a little a more. Or at least try to. Truth be told, I don’t know who I am without the darkness I’ve carried around with me my entire life. As I progress through therapy I find I am much more easily triggered. Triggered by things I couldn’t see coming. Triggered by shows I watch, people I love. The truth is, my truth anyway, I haven’t been okay in a long time. “Fake it until you make it,” was drilled into me during my more prominent acting days and it seeped into real life. I’m not a fan of explaining what I want or need especially because the safety of doing it myself and not needing anyone quiets the noise in my mind, quiets the shake in my bones. I will as always keep fighting, keeping pressing on, keep chasing dreams old and new alike, keep pretending until I no longer can bury it and it explodes into a supernova of sorts. I will keep going to get through, to survive until I find some relief and can exhale again. But, I am not okay. I haven’t been in a long time. I have bursts of okay and better. So if I haven’t been there for you the way you wish I was or needed me to be just know I wanted to be so badly it hurts but in order to survive and one day truly live, I can’t be what you need. It’s time I am what I need.

Invisible

Invisible. Invisible illness, invisible pain, invisible struggles, invisible sacrifices, invisible compromises. My mind roars violently as it whispers things to me, things to me it always has. Things no one should hear from their own mind. Nightmares brew and rumble with agony and vengeance, echoing throughout the day. Exhaustion is just life sometimes when your own mind wages war upon you each and every night. Restful sleep is as much a fantasy as understanding , patience and reprieve.

Perform my dear. Perform the greatest performance of your life that all is well and you are strong and content. Perform so well you fool yourself while you snuggle into darkness and finally feel safe and when you faulted all you love will punish you, ridicule you and deem you selfish. My mind is a wicked, cruel beast.

Dreams have been mistreated, broken and lost. Hope is for other people and once again I am left to survive and endure when my mind wins yet another foolish battle I refused to court.

The more I smile with mascara laced lashes looking confident and proud, the more I am losing this war. Each hand that reaches toward me, the more I recoil and clench.

One soul keeps me grounded, existing, trying. Forever I will fight my demons for them but that is all it seems to be anymore. Fighting the hungry demons from crushing my bones to protect you.

Perhaps, some day it will be more than that. Perhaps some day I may lose.

 

Choices

 Circumstances do not change unless we change them. If we do nothing then we accept those circumstances. If the path changes we cannot bury our heads in sand and think of only the past. We must always move forward as the sun continues to burn and when it no longer can and all is over we will all see complacency was a mistake we all chose a time or two. 

 


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A thought

It’s hard when you have a diagnosed mental illness. Even if it is a neurological chemical issue. Some people may be more understanding than others. I’ve learned over the years it is nearly impossible to fully comprehend the depths of a mental illness for some even if they themselves suffer from one or another and I too am guilty of this. Though I struggle with bipolar disorder, anxiety and I struggle with admitting to myself, PTSD, I find it especially challenging to deal with the continuum of others mental illness’s. Something I never have wanted to admit. Even with the frustrations I have watching those I care for struggle to deal with my own, I never wanted to react in the same matter but I know sometimes that’s exactly what I do. It hurts when someone you care for can not understand your illness or struggles and becomes frustrated with you but I do understand why it happens, if only simply it being human nature and self preservation. Some times you just cannot see past your own trauma and turmoil to another’s. Sometimes it’s about the way they cope or don’t while you fight to battle your own conditions. It’s not fair. To any party involved. No matter the depths of my despair and suffering I always think of these people I care for regardless if I cannot help.

I cannot be what they need and that hurts. It hurts me deeply and it hurts them. In the end I try to remember most that we all fight our own battles and we do so in our own ways. Some want you to need them while you may need them to want you and not need you, and this can be volatile. I do not wish to hurt anyone and if I have, I am truly sorry. I always will admit or at least try to, my part in how things transpired to where we stand, even if they cannot.
Sometimes people are in your life for the duration and some for only a short time. Neither is wrong, as life continues and remains fluid carrying on with or without us. I feel no ill will to those who are gone, those who needed space, who have walked away or I have walked away from. I hope the same things for them as I do for myself, for happiness, health and some peace.

 

Remember, be kind.

How do I?

It has been quite a while since I have allowed or even tempted to have my fingers dance upon the keys of my trusty laptop. I am continuing to fight through life in a way that brings purpose to it and with many goals that show light at the end of the tunnel. After busting my ass I passed my last semester of community college, finished my first draft of my current book and after a terrifying long two weeks a medical test result came back normal. You would think I would be more at ease but the emotional rollercoaster of the last few weeks, hell the last few months has been taking its toll. I look strong and I am but I struggle or I shut it all down and away into the darkness unable to live through it otherwise. I take the blame, the guilt, the hurt and swallow it. I lost. I can admit that but I could not survive going through the motions any longer, repeating the same miserable day. I have had diagnosis after diagnosis and I offer them as an explanation and not an excuse because depression, bipolar disorder, anxiety and PTSD; they are all real. I’m not sure why people think they are exception to the rules of my life. The disappointment dripping from their everything kills a piece of me each time.

So I will continue to do all I can to provide the life my son deserves, the life I deserve. I will take the blame for the sake of those I love but I will no longer stay complacent in this horrid fantasy they have for me. Alone is just fine. After all, it was the one thing I asked for that no one has ever been willing to give me.

 

Goodbye

Life has been a whirlwind roller coaster of chaos lately. I’m not sure if I haven’t written because I had nothing to say or too much. My life shifted in some extremely uncomfortable ways and as I purge through the trauma of my past blindfolded, the emotions and feelings tied to them erupt seemingly from nothing.  I have been attempting to make choices in my life that effect my life in a manner towards what I want or need for myself and as always when it effects others in a way not pleasant or simply not what they want or need, let’s just say it hasn’t been going well. I am so exhausted of putting others ahead of myself and simply surviving. Though at the moment all of the consequences of my choices have not been evoking warm and fuzzy feelings either.

My morning dove, Precious, past away last night. I had decided I would not share publicly as I did not want pity, sympathy or attention but I changed my mind if only because I wanted people to know that he was an amazing member of our family for twenty years, he was loved and he matters.

When I would sing (karaoke) in the back room (aka his bedroom), he would get excited for the company and he was a critic! He would coo and bow when he enjoyed the music and the vocals whether it be myself or a karaoke girls night. Times when my voice would strain or crack or in other way not do a song justice, he would laugh and laugh.

Years ago when we still had my brother’s bloodhound husky mix, Blue, and Precious was in his prime he would chase her around the house. Attempting to land on her back and hop up to her with his best mating call and sing his love of her. She was not interested but it was always adorable to watch.

Life is always happening and as much as we all wish it wasn’t, so is death as it is the balance of life. Precious’s death, knowing it was near still hit me with shock and unreadiness. I don’t know if there is a way to be at peace with it. As I continue to raise my autistic son, write my books, work my job, work on my studies now that I am back in school and all the other million things I attempt to get done on any given day, I must remember that pain, grief, and all things that leave our mark on our lives and soul do so, so that we may recognize the wonder and magic in the world. Honestly, I could use a little magic right now and I think we all could. This world we live in, seems so cold and cruel so much of the time.

I will not quit even if I falter. I will not hide away inside of myself for longer than I need to because it feels easier at the time. I will not put myself last. I will not let my diagnosis’s define who I am. I will grieve and search for peace. I will love without conditions. I will try to forgive, those who have hurt me and myself for all the things I have refused to because of feelings I am not worthy of forgiveness.

Precious, I buried your body with care and marked your grave so I may sing out to you as I once did. I hope your wings have spread wide and you are soaring above all things with peace, and joy in your heart knowing you were loved and we will all be okay.

 

 

Well… That was different…

My nightmares usually consist of post apocalyptic times always with a lot of running and fighting. Sometimes hostage situations of just myself, sometimes loved ones or a combination. Last night, I was surrounded by people who care about me. No matter what I said or did no one could hear me and though it felt all too normal yet, it was different and even more infuriating. All around me people I knew and some I didn’t dressed in dark clothes with red skin around their tired eyes and that was when I saw myself laying in an ugly wooden box. At least I saw my shell or vessel anyway. Dressed in something I would not want to wear for eternity if there was a here after. My best friend and sole god parent to my child walked in with my son in her arms, anger and sadness swarmed her face while he looked confused and seemed to be searching for me.

I listened to people say things such as, ” I didn’t know it was that bad.” “Why didn’t she ask for help?” “How could she do this to me?” With each sentence I grew more angry with their consistent oblivious selfishness until the last question where I only cried. “How could she leave her son?” Once again being overwhelmed by feelings I never could or did good enough for him.

I walked around attempting to poke people or trip them, annoyed I had to attend my own funeral and hear the same stories over and over again. Listening to how great I was or how selfish depending on the private conversation I was listening in on. I sat on my casket looking at my shell thinking, I hope I’m better at this than whoever this mortician was. Picking flower petals and throwing them in the box hoping to freak someone out, mostly out of boredom and on the ground where my son picked them up smiling and naturally chewed on them.

I woke up at the same time as I do every night no matter the context of the nightmares. The first feeling I had was disappointment. I was madly disappointed I had to not only be present in such a nightmare but recall it completely as anything would have been better. Fighting battles, chasing monsters, running from evil entity’s, surviving apocalyptic time and post. The second was a feeling of being filled with an ocean of sadness for my son in. Last, I was angry my brain would have me experience such a thing.

I went back to sleep quickly, no dreaming or nightmares. Shortly after awaking for the next days list of “to do’s” I needed to complete. Still unsure which was worse.

 

 

Hurricane

Have you ever heard a song and felt it in your bones? How could this complete stranger understand exactly what I am feeling? Yet, those closest to me can not.
One of the problems of being someone trapped in survival mode for nearly two decades, is time and time again people remind you the only one you can truly count on is yourself. No matter their intentions. Some people I don’t have to speak, they just know what I am trying to say, when I truly need a hand to reach out. While others, don’t.
I have been enduring one of the hardest years of my life and this week has nearly broke me. If I didn’t have my best friends I honestly don’t know if I would have survived this long, or if I would even be alive today. One, offering to take care of my child for a couple of days so I can get a much needed mini vacay up north to see another of my besties. One showed up on my doorstep with a bottle of bourbon and a few hours later another showed up with a jar of her apple pie moonshine. I am so insanely lucky to have these people in my life.
I don’t know how to find the words to make it clear what I want or need for those who just can’t understand, to not only understand but put action to it. Sometimes a girl just needs to be heard and sometimes a girl just needs to be rescued. When you’re not actually Wonder Woman, there is only so long you can rise to those sort of standards.
It had been a long time since I have felt so hollow. When life and people again proved my cynical jaded pessimistic viewpoint as what is and always has been true, how the hell am I ever going to change it? I am not enough. Not enough to change it, not enough to deserve what I need or want. Not enough to be the parent I want to be, friend, spouse, daughter, sister. I fear I am not stronger than my depression, my anxiety, my nightmares. At least not to be a whole person, if that was ever something I even was as I may be that good of an actress. Fooling all of you and even myself.
Don’t hug me and say you’re sorry, I love you too and I already know. Words are not enough, if that wasn’t clear.

When I say step up or step back, it is because I am breaking and trying to breathe under water. Water no one else can see and perhaps doesn’t actually exist. What I want, is for you to step up in all the ways I did say but you couldn’t hear me and if you truly cannot do that than what I need is you to step back so I can get one last breath to fight, to live, to survive.

 

 

 

This is the song in my bones.

Suffocating and Surviving

Maybe I don’t know who I am or what I’m doing but I am trying to figure it all out.  I lost a part of myself I was told I wasn’t allowed to be, leaving me hollow chasing a feeling I couldn’t imagine to be real. A life I never felt I deserved. I fantasized of a life more than this and far worse too. It wasn’t about an unwillingness to risk, more so it has always been the willingness to sacrifice my wants and needs for others to only find it was never enough. It always takes pieces of me and I’m not sure who it is that is left.
On no more than two to three hours of sleep a night for weeks now (or longer honestly) I find it difficult to raise to the standards some are used to. It’s much harder to pretend I am alright with little sleep, being awoken by horrific nightmares that continue to haunt me for days. My gypsy soul wants to wander, explore and feel alive but these things are selfish so I push them far from me.  So I work toward a better life for the one who needs me most regardless if that is the life that would make me happy. I’m not sure if my happiness has ever been a primary focus in my life though sometimes I’m sure it seems this way to others. I have been trapped in survival mode, enduring so much for such a very long time now. I’ve fooled so many into this strong version of myself unable to rely on anyone the way I truly need I’m not sure who I am anymore or if this is me. If a version of myself free exists some where or if that version is lost forever.
All I can think now at 1 am is, have I stayed up late enough to avoid these traumatizing nightmares? Will there every be a reprieve for me?

self portrait ©Andrea DiGiglio 2017

I soar out of bed grasping onto hope that what I endured was not real. It wasn’t but it feels so real my body and mind in fact believe it was and so I carry it with me always. The nightly nightmares I bare increasingly more traumatizing and horrific the worse my waking state seems to be. The more fighting or arguing, the more lack of support and help, my dreams feed on it and love to rub my nose in it. It’s strange to me how some people think because the words of support pour out of them without action that is sufficient. Claiming interest in the things you care most deeply about with little to no investment if it is not a shared interest with the expectation of a return on their own passions. Putting in ten percent while lying to themselves they are one hundred percent invested and expecting undivided attention and when its not given turning harsh and cruel. For someone with PTSD (and those without), it adds to the stress and when that person has spent more than half of their life enduring this suffocating existence trapped in survival mode continuously made promises however true at the time that cannot be and never are fulfilled it makes the enduring of this existence much more difficult to bare. This isn’t a blame game, regardless if my bipolar diagnosis is warping the chemicals in my brain to make me two different people shoved in this one broken shell, this shell everyone speaks so kindly about, that isn’t really me is it? With a constant fluctuation of moods and personality traits how am I to know who I am anyway? I was told the darkness within me was evil but it’s the only constant and safe part of my life. It takes a hold and comforts me when I need it most when I am at the point of quitting it all, washing away my tears and sometimes my pain if only for a short while. It never judges me and I wonder if denying it’s existence is the part of me missing that makes me feel whole. I am beyond damaged and more alone than I ever could have imagined trying to pretend I’m something I’m not for the sake to not cause discomfort to those I care most about. At some point they all claim I do not have to do that with them but if time proves anything at all, it proves the fallacy of what they can endure and the fact I can endure almost anything, but with great cost. 
How could I possibly trust or rely on another being when time and time again it is proven I must be the strong one? I am so very tired of asking for what I need only to be let down and challenged with the notion I should be grateful for what I have. Unwanted assistance in nearly an opposite fashion to what my mind is screaming for. I so wish that I was loved because those want to love me and not because they need to love me or need my love. I’m tired of being needed. In the beginning of all things I am wanted, chased and at some point I become some burden who is no longer giving them all the things they want. Eventually never enough all while draining the life within me while striving to be what they want me to be with no return.

Here’s the hardest part of all of this, I need help. So do many of you. I have a psychiatrist, therapist, trauma therapist, neurologist etc. Helping me fight for my right to not only endure or survive this life but perhaps live it. This isn’t the help I mean but clearly the help I do need will never come. I wish others would do the same, fight for themselves rather than live in a different sort of darkness they refuse to climb out of, playing the blame game attached to an idea that life or people owe them something when they don’t.  If only they took care of themselves rather than adding their baggage onto my back and wonder why I’m breaking and unable to help them, they may heal and maybe I could too. We are here to love, to live. “…All I’ve ever learned from love was how to shoot somebody who outdrew you…” To live… what a beautiful fantasy like three moons shinning over a clear blue sea, and sand between my toes. I am suffocating and trapped and every step forward I fight through the chains and weight of a thousand worlds attached at my ankles and yanked yards backward. I need my own space, I need more time than most to myself by myself, uninterrupted and not to be treated that what I need and want is not valid because it hurts someones feelings or offends them because fuck that bullshit. Learn to love yourself, be alone with yourself, survive on your own as I have done. To many being alone is a curse or the worst punishment of all but to me as a survivor I can always rely on my self to endure, to survive to fight through every god damn thing thrown at me. It’s people who break me. With intention to do so, without intention to do so. Does that part even matter? Being alone is where I can find peace in a world so horrible and filled with chaos and selfishness. I haven’t been alone with myself in so many years, taken from me just as the control over the chemicals in my brain has taken my control over my emotional and mental state. Taught wanting such a thing is wrong and cruel to those who surround me, smothering the light inside of me wondering why I feel so vacant. I have a gypsy soul and that was snuffed out too. So we are left with this shell, the shell everyone seems to love and I despise. Somewhere in the darkness I am screaming and clawing my way out, if only I had help. If only it mattered more than…

 

I’m Tired

I don’t remember the last time when I spoke the words “I’m tired,” and that was all I meant. Whether it was to someone or to myself. I’m tired has replaced I’m okay, I’m all right, I’m fine which often was retorted with, “Are you sure?” Sometimes followed with unsolicited advice which honestly was never much help in climbing out of that headspace. I’m just tired has replaced I’m exhausted. It’s replaced I’m sad, I’m depressed, I feel broken. It’s replaced I feel hopeless. I’m not sure at what point I am tired became so much more in those two words. It creeps in the darkness of the night stealing sleep or causing nothing but sleep. It has no shame on a warm sunny day and still keeps coming at you with clenched fists. Frankly, most times talking about how I feel traps me there and I want to escape it and I have therapists for that sort of thing anyway.

I suppose I may not just be tired and after so many years like this it feels as if this is who I am now. It’s not all days but it’s closer to that being true than not. Sometimes saying I’m tired, is to not burden those you care about with something you can’t help feeling. And after so much time has passed and those feelings are still there the compassion dissipates from the ones you need it from the most. It is not intentional to hurt but the truth is, sometimes it does.

Maybe I don’t have anything positive to say and I am a jaded, cynical pessimist. And life experiences and jacked chemicals in my brain created the monster I feel I am now. So no, I won’t complain about my day, the physical pain I’m in I try to ignore and fight through or for the mental warfare inside of my head just to be told to chin up or buck up or to play the one up game with people I’m not trying to compete with, especially a game where every one is the loser. To be asked how I am and for the response to my reply to feel like nothing more than a brush off, an obligation to ask but no substance behind it. And yes, I already know that someone else has it worse than me but I still have to live this life in this body, in this mind.

I miss truly enjoying things, things I used to or even new experiences or even something so simple as chasing after dreams. To be trapped in survival mode only because the chemistry in my brain is faulty. Some days, not all days, I go through the motions only to get to the next day and only to do it all over again like Bill Murray in Groundhog Day or Sammy in the “Mystery Spot” episode of Supernatural. But I haven’t given up yet and that should count for something shouldn’t it?

So yes, I’m tired.

 

Endure. Survive. Endure.

Endure. Survive. Endure.

I looked at the ground, my heart broke. It took a deep breath in and tried to retain all the pieces it seemed to be in now. It didn’t. It couldn’t but be damned it still tried. Sometimes in life you are sitting still as the world rushes by you. Others, you don’t have enough time for all the things you need and want to do. Sometimes you are in motion at a steady speed until something hits you like a boulder knocking your ass back to the start line. Similarly, I had been struck with a still force across my entire being. I mourn the loss of something dear to me and feel as though I always have and will again. So many times I have roared back to life and tried again and again to reach a goal I fear I will never achieve. In this, my illness wreck’s havoc on me as it is the only constant in my life. It is cruel and meticulous. The noise in my skull is chaotic most of the time, especially this moon phase. You fear the darkness but its deep within me and all around me and feels like, home.  Many don’t get it and I didn’t expect you too. Yet, I was hopeful. Something that has never, not one time, ever paid off. Time and time again, the girl who thought Westley and Buttercup’s story was what true love really was or could be, reminds who I am today of the possibility, it could. So incredibly cruel. Another cycle burns through the night and I play a game within myself of Dr. Jekyll and Mrs. Hyde. No matter who wins, this sliver of my heart in my hand cuts me, deeply. A reminder of what happened here as to never forget, as if I could. Another toke, another drink, another pill. Numb. Wanting numbness to take hold, to give ample time to heal before I feel. My will laid at the waste side, unable to help me now. Endure. Survive. Endure. Repeat. As I reach up and feel my wet cheeks I know what I feared all along was true. My soul is in love with the idea of true love and I am far too jaded to play along anymore. As I am now as alone as some days I feel, I have the ability to do as one does when this sort of thing happens. For now I will recoil to the darkness that stalks me as it is always the same, always safe no matter how bad it is for me. Never lost I glide through the darkness until I catch the corner of a dresser. I open the top drawer and slide the shard into it, gently. I close the door and let the darkness absorb me until I am no longer present in this moment.  Silence. Endure. Survive. Repeat.

Ramblings From an Unusual Mind

Archive: Conversations about writing with youthful ears

Conversation with a small group of youthful ears. “You only know you’ve truly loved someone by the hole it leaves in your heart when they are gone.”

I was standing in front of a small group of youthful ears answering questions about how and why I chose to write. I said, “I didn’t choose to write, it’s something I just have to do.” The teacher smiled and asked if there were any techniques I could share with her students or words of wisdom and I looked around at the room and said this,
~“I want you all to think about the worst day you have ever had. Some might say, you’re worst day…” I pointed at a student. “Was worse than say yours,” I said as I pointed at another student. “This though technically on someone’s scale may be true, it is not. No one has the right to tell you your worst day or any moment is not worth as much as or worth more than someone else’s.
When you write a sad scene in story don’t write careless emotionless words on a page and hope it hits. You need to pour your soul out, pluck your sorrow and bleed on the pages you create. Moments such as those are then directly tied to your work. What you felt that day twists and turns and erupts in the sad moment you create. Experiences in life impact your work as they often do to your own lives.

Let’s say the main character is a young man or a young lady and her best friend or his mother has died and the funeral has just begun. You’re not going to say, “oh mom died, damn.” Perhaps he is being strong for his sister and father, trying with all his might to hold them up. Begging himself not to cry as he watches the box that holds his mother’s shell, lower into the ground. His palms sweat and he tries to force a smile as people in her life pay their respects, numbing him to the core with each empty hug. He waits behind after everyone has left and he curses at the sun to himself, that the world has no right to look happy and joyous when he felt as if something was being ripped out of his insides. Long after the dirt and sod had been thrown onto the casket he remained standing, silently. All day he stood there, late into the nightfall. Staring in such disbelief that it all was real. A middle-aged man with scraggily gray hair approached him. The man said, “You only know you’ve truly loved someone by the hole it leaves in your heart when they are gone.” The young man felt his throat closing up on him, threatening of a possible breakdown. He sighed shakily before leaving on unsteady limbs to his car. He climbed in and as the door slammed shut, he faltered. His eyes rained despite his protest and as he let the loss consume him a new feeling of intense rage began to painfully boil in his blood. Soon guilt of all the things he never had the chance to say or do attacked him relentlessly. His mind was at war with his heart and soul and he was weak from the battle. If you listened quietly, you could actually hear the sound of his heart shattering into tiny pieces, slipping through his hands. A bang on the glass jogged him back to his numb state he had prior to this, grown accustomed to.~

Each student connected with a different aspect of the short story and had a million questions. I smiled as one asked, “Who was at the window?”

“Well,” I said, “Whoever you want it to be. It could be his father or sister or perhaps a high school sweet heart or new love interest even the old man. Someone who may break his heart far worse or may heal it. Each of us would write the next scene completely different and none of them would be wrong. When you tell a story a piece of you, however small, leaks into your book or story and that is not a bad thing. Your reader wants to feel something and to be taken on a journey. The point here is this, every moment in your life matters. As does every moment in a book. What you have felt, enjoyed, suffered through, its shapes you as a writer and as a human being. Live your life and don’t be afraid to allow your past experiences to linger in your work. The story you have to tell matters and your life is an asset to storytelling. And your life experiences are a part of what makes your own writing style unique. Good luck, keep writing.”

Drea

Dreams: Crazy portals in our brain

Dreams can be crazy little portals into what the hell is going on in your brain. I just wish I could feel rested the next day instead of exhausted as if I physically endured what unfolded in my mind. It was a wild ride last night and honestly, I’m not sure how I feel about it all.

 


It always feels as if I dozed off and suddenly even violently awoke in my dreams. This was no different. I looked around at a room of family and friends in a strangely large house as it seemed to have many floors. Maybe it was a hotel but it felt more as if it was someone’s home. We were about in the middle on the maybe ten story house watching a movie or something, (which was odd in itself.) A tornado siren wailed outside and everyone jumped up and headed to the stairway.  Someone yelled this stairway only went up so we would all have to go up and then across to another stairway to make it to the basement for safety. I was in the back making sure everyone was there when I couldn’t find my son. Panic raged through me and I called him, searched for him and everyone else was just gone. Saving themselves. I ran up the stair way and checked every floor screaming for him. He’s non-verbal so I don’t know what I was expecting.

On the tenth floor, having trouble breathing I searched the floor and in a bedroom I found him crying holding his blanket and tablet. I couldn’t figure out why he was up there so far away? I scooped him up in my arms and cried with relief that I had found him. My little dog barked at the window. Until I wiped my eyes away and saw outside the tornado nearing us. I slid my boots on, grabbed my large overnight bag and quickly grabbed what I could. I threw my climbing gear on my back, a sling bag over my shoulder with ropes and a grappling hook and a bag that strapped around my waist and thigh. I picked up my son and ran out of the door, the siren screaming or maybe it was the wind? The building shook fighting for its life as well as I ran down a stairwell. My dog followed but was terrified and stopped in a corner. I scooped her up and threw her in my bag, we didn’t have time and I wasn’t leaving her behind. I ran carrying my son, his most precious belongings and my dog down stairs until the ended and into another hallway.

We never made it to the basement. The house was hit by large debris ruining much of it but was still standing. I remember letting my dog out of the bag while clutched on to Aiden, walking up to a nearby window seeing so much destruction. It looked as if everything had dropped ten feet below the house. Out to the left there was a deep crater where a few dogs where attempting to climb out. On the right it now looked like a hill of the transferred soil and debris. People in swat gear were climbing it being led by a handful of german shepherds which made my dog bark relentlessly. At least they knew we were here. I thought knowing the way we came, the stairway was destroyed and the house felt unsteady at this point.

I watched the people working to free the survivors in the basement. I set my son down to pull out my rope and tools and put my dog in their place. I hooked the grappling hook onto something sturdy nearby and attached it to one rope as we were still quite a ways up. The other rope I wrapped around my son and myself, making sure he was secured to me. I dropped the large bag out the window, climbed out and began our descend. My dog barked unhappy about her circumstances but my son smiled at me and enjoyed the ride, holding me tight with so much wonder and life in his eyes and I lowered us to safety like Fessik in reverse.

 


I woke up in the middle of the night. Well it was the middle of the night for me I suppose. It was about five a.m. and my son had woken up and needed to use the bathroom and wanted something to drink. Feeling a little more centered going through the motions of 5 a.m. motherhood. I laid back in bed and surprisingly I quickly fell asleep. Usually I would start the same dream over or perhaps partly through to learn another piece of the puzzle of what happens next. I dreamed, just not the same one. It seems I dream like this most often when I argue with my family or my stress levels increase throughout a single day.


I was in a building much different from the first. This building was cold. It felt like it was underground of a hospital or something similar. It felt as I was not suppose to be.

I was walking into a door in what looked like white scrubs with a large white hood thinking, almost there. “Almost where?” I mumbled to myself under my breath. I walked into a large room with 30-50 people with my head down as my feet led me (as if they knew where they were going) toward a glass door with a key swipe fab. I waited until someone else exited and squeezed through, locking it behind me. Two girls laid strapped to tables in similar attire. I pulled my hood back recognizing them though I couldn’t say who they were. I grabbed a large silver bed pan nearby and slammed it against the man’s face leaning over the first girl’s bed. He crashed to the floor unconscious causing alarm outside the door’s. Guards were yelling, people were running and lights began to flash wildly. I removed the IV’s and unstrapped each girl. “Can you stand?”

“We will manage. Thank you.”

“Where is she?” I asked looking at the empty third bed.

“They moved her, out of the facility I heard.”

“Time to go.” I said with such sadness as whoever I intended to save was not there. We armed ourselves with nearby items as I stole the man’s swipe card. We unlocked the door surrounded by a few guards, rushing them barely making it passed them. We ran through the screaming people nearby and excited the first door the sunlight came through with the key card.

We ran through woods and walked along a strange deep river filled with strange whales which resembled bass fishing lures with large bumps on the top of them that looked like giant purple carnations in a mass group on the front top of their heads. I thought they looked misplaced but I could feel them traveling with me the way the crows always do on my walks and it felt comforting somehow.

We ended up on a beautiful street in the city on a large from lawn in front of an even bigger house, painted in tans and browns with large pillars in front and a wrap around porch. It felt oddly familiar. I stared for a while until one of the girls brought my attention to a tree on the front yard the furthest from the house. Magnificently gigantic with branches as elegant as a dancer. Balloons were trapped in it all over, their ribbons wrapped around branches and tangled in its leaves. The balloons seemed to have names on the them but I couldn’t make them out. A light breeze rushed me I closed my eyes until I heard a branch snap and watched a balloon begin to fall, catching the breeze. I chased it, tackling it to the ground. I turned it over to find it was my name on, “Happy Birthday, Andrea!” I turned back to the house as two women I recognized with love in my soul echoing back, came walking down the front steps of the house. Except, these women looked to be at least 30 years younger than they are now, rushing to embrace me. We changed into something more comfortable, jeans and black shirts or tanks and boots. I wanted to stay but I couldn’t and i don’t really know why. It felt like home but my mission was to save this girl, I didn’t even remember. We embraced, cried a little and the red head whispered into my ear something and my eyes lit up. I can’t remember what she said but it felt important.

We returned to walk down the path near the river. We came upon a little town and when we saw the words “Bar” and “Food,” the girls insisted we go. Reluctantly I agreed. Inside our eyes met with a man, the same man that had exited the door at the facility where I snuck in to save them. He smirked at me. Floored I launched at him, taking him to the ground. “Where is she?” I demanded.

“She’s gone.” He paused before saying, “They killed her.”

“No!” My soul felt as if it caught its breath for a moment. I grabbed a nearby beer bottle and smashed it against the floor near his face and held it to his throat, “You mean you did?”

“No. I tried to save her. Sure for myself but I did try. The worst part is, they will do it again. They will do it again tomorrow and the day after.” I dropped the bottle. Rocked him in the face as hard as my fist would allow, crumbling onto the ground.

It was in that moment I realized the girl I was searching for, was me.

 


 

 

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XO

 

Drea

When nightmares feel all to real

Most of my nightmares consist of me running, forever it seems. Being chased or chasing someone or something. Thankfully in my dreams I have stamina and the endurance to keep running. I often wake up with my legs feeling sore at times. I also tend to get into these grand battles, always fighting. Winning some, losing others.

Last night this was not the case at all, there was no running or fighting. Just panic and blood. It felt so incredibly real it took several minutes this morning to come to terms with the fact it was not real at all.

 

*Warning: Not suitable for all ages*


THE NIGHTMARE
I did not feel well and I couldn’t really explain how but it was different than my everyday pain and mental & emotional struggles caused by the 8 x 11 page list of disorders I bare. My heart was racing, my stomach turning. I stared into the mirror in the bathroom attempting to rid the awful taste of something horrible about to happen, out of my mouth. I rinsed my mouth out with mouthwash and as I spit five teeth coated in thick blood mixed with Listerine, fell from my mouth into the sink with a clank which seemed to echo. I covered my mouth with a shaky hand, attempting to bare my weight on the counter with the other. I coughed, choking on the blood and in reflex spit more blood into the sink. Followed by more teeth. My eyes widened. I gathered the pieces of myself I had just lost and I ran out into the house barely audible saying, “ER, watch him.” Referring to my six-year-old son. An argument or barter system would have played out if the blood had not been all over the outside of my mouth, leaking out into my hands as I spoke.

I drove myself to the ER as I always did in such situations. Salt stinging my eyes, begging a being I don’t believe in and even hate not to let this be it. My son needs me. My mind screamed, pulling into the ER, nearly colliding with a parked car parked over the line as people who drive SUV’s and other large vehicles always seem to do. I stumbled out of the car and into the emergency room doors nearly collapsing on the security guard. He caught me and partially carried me to the check in desk. I attempted to check in but when I spoke my words were colluded with blood and more teeth flew into my hands. I could only painfully stare into the woman’s eyes with trembling lips. Begging for help through my glossy eyes.

They took me back steadfast and most of the doctors in the ER came to see my strange condition. A specialist of sorts with sleek blonde hair pulled back into a low ponytail, tugged at her white coat while examining me. Her demeanor was cold and she made no effort to ease my discomfort or mental turmoil. She walked away to speak with the attending claiming my “infection” of sorts was due to a drug I most likely injected. So much judgment leaked out of her skin. Injecting myself was something I had never done and as I attempted to explain no words fell from my lips, only red and white. Unfortunately the only way to treat this insatiable infection was to know the specific strain and I had taken no such injectable drugs. For a moment death would be imminent. I began to thrash unwilling to accept this carved out fate. They attempted to hold me down and as ordered searched my body for needle marks anyway. I tried to tell them but was unable to speak clearly and so while they searched my skin I wrote in my own blood on the white bed sheet, “no injections, only medical pot.” Something I use to treat my disorders.

At this point my family and friends had begun to start showing up at the ER demanding answers on my condition. It seemed to always take something extreme for a response of care by action and not only empty words. I am not sure who it was who was actually able to speak with the doctors and chose to race back to house I live in to find my “stash,” as the doctor called it. Maybe my lack of faith to believe someone would think to do so. By some wave of luck the medical team was able to test the contents to find one of the glass mason jars of marijuana was in fact laced with a deadly substance causing rapid decay in my body. They began inserting the treatment into my IV and I felt it burning inside of my skin. Now I needed major surgery to remove the infection in my mouth and replacing all of my now missing teeth. They claimed they were optimistic in which the infection hadn’t spread anything further. At this point, I was not.

Assuming the treatment was working, a elderly woman with a limp wheeled a computer on a cart slowly and a stack of paperwork since I could not speak, into my room as naturally I had to apply for a medical credit card to pay for the expenses before they would start anything as they already screened that my insurance would not cover the “cosmetic” tooth replacement.  I filled out the paperwork. Twice, because I kept dripping blood accidentally onto it.

I handed the paperwork to the woman, suddenly dropping on the edge of the bed clenching my stomach as a sharp pain followed by cramping erupted through me causing me to vomit. I puked up some strange large mass of sorts that I honestly thought was an organ I might need. Finally, the doctor decided to start the surgery regardless of the status of my potential medical credit line. She up’d the dose of the treatment as they rushed me down the hall.

It was a strange feeling watching them as I felt myself leaving myself in a way as they put some sort of mask on me to help knock me out while someone else injected me with something but from my point of view it just felt like the ice queen specialist was putting a pillow over my face to smother me and I wondered if that would be so bad? I choked trying to talk through that mess, trying to say my sons name. I tried to smack the bed to draw anyone’s attention to it but I’m sure it only looked as if I was tapping at what I had already written as they were wheeling me down the hall toward the OR. It read, “single mom, autistic son. All he has. Please.”

I woke up in the dream alive, in a panic after the surgery. Wanting to see my son, to hold him.

Immediately I shot out of my own bed, actually awake. Not sure if I was in reality or not. Not realizing for a while that I had been dreaming all of those horrible moments.

Unsure which was worse.

Today was a hard day

Today was a hard day. Days similar to today have tried to break me and sometimes I think where I find my strength is keeping it all deep inside of me wrapped up tightly with all the other things I bury for the sake of others.

I often write about how being bipolar feels to me. How depression binds me. I tend to shy away from sharing the part of what it is I actually go through to heal, to survive. The experiences themselves I hide only showing the pretty words strung together in a useable quote. To protect myself, to protect other’s maybe. Not today. Today I had to start over with a re-assesment of my mental health and well-being. I have come quite far from when I started my self-care just over five years ago. Yet, I cannot seem to do more than survive. 

I walked into the office feeling the same I do most days though it’s hard to describe. I mostly go through the motions of what needs to be done to get to the next day only to repeat the cycle. Lying to my brain that tomorrow, we can breathe, we can relax, we can have a good day and maybe we can do something we want to do without criticism, without guilt, without a time limit as my time has not been my own for such a long time now. So, I walk in and sit down and BamBam the therapy dog climbs up his giant stairs onto my psychiatrist’s desk and sits right in front of my face waiting for his pets.

Isn’t he adorable? So sweet and seemingly concerned of my well being. Throughout the session I would watch this look overtake my doctor filled with sadness, concern and so much empathy for what it is I endure. I was uncomfortable, I didn’t understand why? It seems that look is gone from so many familiar faces it was unrecognizable. Conditioned that what I endure is not as bad as it feels or not as severe because I am strong, because I survive, because I am a talented actress and the best performance of my life, is my life and because I am shown that I am selfish making such an experience feel unworthy. I fought tears during the 90 minute season as if crying was painful, or not allowed but really when I start I often cannot stop. Sure sometimes I want to be held, in silence but mostly I prefer these moments are when I am alone. I feel myself betraying myself by doing such a thing in front of another human being. Every part of my being screams to stop, Stop, STOP! I do temporarily, at least until she pokes another trigger.

I have control issues. Anytime I have “let go,” the consequences have been astronomical and I carry them always. They are as much a part of me as my bones, skin and blood is. The things that break me in session, are the same things that have been slowly killing me, making me sicker physically and mentally. It is part of who I am, to feel everything so intensely or feel nothing at all. I’m not really sure if that is part of my personality at this point or just a combination of Bipolar Disorder and all the other labels slapped on my chart. The main triggers, are naturally things I am not in control of. I drift while she types, watching BamBam now in his tiny dog bed, belly up and snoring louder than something so small should be able to. The third time she mentions how difficult my situation must be due to my son’s autism, I correct her firmly. “He is not a trigger.” My love for him and his for me is unconditional. WE accept each other exactly as we are. No one else does that. Maybe that is why the bond between mother and son or father and daughter seem to be so strong. I explained and she accepted.

After adding another diagnostic issue to my chart she asks cautiously if I would be wiling to see a trauma therapist. (Meanwhile I can still see my regular therapist.) Now of course how far I’ve come seems minuscule at this point. She says something along the lines of, “I know to you, you may not think what you have experienced is trauma but it doesn’t have to be physical to be considered trauma. You show classic sign of PTSD from the trauma you have experienced (specifically these 2 instances, including the sudden seemingly random onset of your disorder almost 18-19 years ago) and you have been in survival mode ever since.” My eyes filled quickly and suddenly. So much truth is, hard. I answer her questions, telling her things I would never tell another soul (but I want to feel better, so I do.) Telling her things I have told other’s but had received no reprieve or true help besides empty words, disinterest, judgment, etc. Blah, blah, blah.

We make a plan of action, the best we can with the hand we are dealt. BamBam wakes and comes over to me to say his goodbyes. I leave physically exhausted, mentally drained. Today was a hard day.

I left to pick my son up from school and we went home. Continued with all the things I am supposed to do, have to do to survive. Did all the things I can muster the strength to do with a smile; so my son is happy, healthy and feels loved for being exactly who he is, every single part of him that makes him who he is and allowing him to exist the way he needs ands wants to. My turn isn’t a real thing. It’s a wish list my doctor has on my chart and on this list there are other things she wants for me that I won’t allow myself to dwell on, to want (when I can help it), knowing there is always a barter to be made for a fraction of what I may want and sometimes a punishment of sorts for thinking about myself. Fighting for things I should have a right to, well I do not have the energy, will power or time for such silly things.

Tomorrow I will feel a little better, until I don’t again. Back and forth. My mental illness is a neurological (and genetic) condition I did nothing to aquire and no longer can tell if I deserve. But don’t worry, in a few days I’ll gather myself and be back to the approved version I have been shown, I am allowed to be.

Today was a hard day.

_____________________________________________________________________

 

“I think the saddest people always try their hardest to make people happy because they know what it’s like to feel absolutely worthless and they don’t want anyone else to feel like that.”

― Robin Williams

Words and stuff

Poetry from my past often shows me I am still the same person dealing with the same things. As someone with Bipolar Disorder has to. With how much the people in my life have changed over the years I wonder why not me? Do I know who am I? Is this why I am so much the same?  Strange questions I ask myself though it may be the bourbon talking.

I digress, here’s two poems while I continue to situate this blog.

 

____________________________________________

 
In the nights last breathe
you may sit alone and cry
nothing left but hopeless dreams
that you are to imperfect for
no one cares to hear your voice
to see your sweet lipped words
but even in your loneliness
your light shines somewhere in this world.

 

_____________________________________________

 

Wandering questions
circle in my head
are they really questions?
were they really said?
too flustered
to consumed
by every rambling thought
to give a damn
about these questions in my heart.

 

______________________________________________

 

xo
Drea

Cinderella isn’t Dressed in Yellow, She’s Dressed in Black and She’s Depressed

© RussTurnerphotography
Cinderella isn’t dressed in yellow. She’s dressed in black. And she’s depressed, in pain, ill and exhausted but still getting the damn job done. She’s on mood stabilizers that don’t help nearly as much now that she quit smoking cigarettes. She doesn’t live with step relatives but blood and her dad isn’t dead but he’s not there. Her time doesn’t belong to her and if she attempts to steal any of it she is punished for being selfish. When she asks for help there’s always a price to be paid. Prince Charming brings her home (back to the house) at midnight when she can get a sitter. She sleeps a lot or not at all. She forgets to eat. She’s dying and she doesn’t even care anymore. All they think is, how selfish what about me?

© Andrea DiGiglio

From my personal journal during a bipolar episode

I’m sharing this again because for me, it’s important to share my struggles. In hopes that other’s will see there is still reason for hope. I still have bad days. Hard days. Now, my good days are filled with so much love and joy and kindness, it truly makes these bad days easier to survive. I’m still that girl and I always will be. That’s the nature of my disorder, but I am so much more than that and now I can see that.

Here is an entry from my private journal. Honestly it’s on the lighter side, not sure what that says about my inner struggles.

October 2013:

I feel as if I’m floating through a sea of shadows. My mind is as tired as my body. I try to find the lighter side of things but the irritation of doing so is nauseating. I dream sometimes of a little house with an ocean view on a private beach where my mind can finally relax and I can enjoy my time here in this world. I dream of a body I feel comfortable in with no self loathing. Sadly, all of these things aren’t real and they leave me longing until I break down from the loss of something I never even had. As I cycle through waves of yet another bipolar episode I reach acceptance if only for a short period of time. Acceptance for who I am, baggage and all. For who I’m not and never will be. Allowing myself to dream even if it will never come to pass. I float between angry, depressed and a calmness I refer as the calm before the next storm. I wonder if I have the right to want more for myself. I try to be thankful for those moments of eerie calmness and quiet contemplation. It’s always so difficult to do so as I know if I wait a few hours, a day, days even I’ll be back to singing the blues and crying myself to sleep. My wonderland is a wasteland for broken souls. Once again the calmness before the storm settles on my skin like an itch I just can’t scratch. I will always continue to fight this nearing episode with what little strength I have. The air is crisp and inviting me to soak up the sun. As if the darkness wasn’t calling out to me. It’s moments like this I crave to be alone, yet a piece of me reaches out to those I love for comfort, for acceptance. The things I love to do hold less meaning in times like this. A hollowness erupts inside of me, taunting my rage and sadness. There’s no real rhyme or reason to feel this way. I know my life is far from horrible. Like a warm blanket the darkness comforts me as it usually does, inviting me to let go and cry about everything and nothing at all. The sad truth for me is, this battle is everlasting. Light may win today but as a new day dawns the fight starts over. I sit in shambles of a former version of myself. Oddly with hope that it will all be over soon and I will yet again bask in the light and enjoy a fragment of this life. How have I become such a jaded and cynical creature? I sigh deeply and prepare for another drop into sadness and utter grief. As if each time a piece of me dies I must mourn the loss. With shock plastered across me I can admit I am far better now with these modern poisons than many moons ago when I laid adrift in my depressing solitude. I accept this fate as much as I fight it. Always hiding this enormous side of myself from everyone. Knowing they couldn’t take it, knowing I couldn’t take that look upon their face or their response as heartfelt as they meant it to be. It feels as if I am living two lives all of the time. Except once in a while, like a full moon, where both sides of me collide and the true version of what I’ve become comes into full view. I don’t always hate her, the girl looking back at me. Though her voice is like poison in my mind. I would never wish this inner struggle on a single soul, it is far to cruel. Yet the calmness washes over me carrying a wicked grin. Even it sees what comes next. It feels pleasure with a nearing episode and yet it feels sorry for me too. I stare into the dark night’s sky wishing this episode would pass me by for once. So hopeful in my suffering. Now that is blind faith. Ridiculous as any other. I am but a shadow dancing through my life. And to be whole is but a dream.

Andrea
XO

Endure. Survive. Endure.

I looked at the ground, my heart broke. It took a deep breath in and tried to retain all the pieces it seemed to be in now. It didn’t. It couldn’t but be damned it still tried. Sometimes in life you are sitting still as the world rushes by you. Others, you don’t have enough time for all the things you need and want to do. Sometimes you are in motion at a steady speed until something hits you like a boulder knocking your ass back to the start line. Similarly, I had been struck with a still force across my entire being. I mourn the loss of something dear to me and feel as though I always have and will again. So many times I have roared back to life and tried again and again to reach a goal I fear I will never achieve. In this, my illness wreck’s havoc on me as it is the only constant in my life. It is cruel and meticulous. The noise in my skull is chaotic most of the time, especially this moon phase. You fear the darkness but its deep within me and all around me and feels like, home.  Many don’t get it and I didn’t expect you too. Yet, I was hopeful. Something that has never, not one time, ever paid off. Time and time again, the girl who thought Westley and Buttercup’s story was what true love really was or could be, reminds who I am today of the possibility, it could. So incredibly cruel. Another cycle burns through the night and I play a game within myself of Dr. Jekyll and Mrs. Hyde. No matter who wins, this sliver of my heart in my hand cuts me, deeply. A reminder of what happened here as to never forget, as if I could. Another toke, another drink, another pill. Numb. Wanting numbness to take hold, to give ample time to heal before I feel. My will laid at the waste side, unable to help me now. Endure. Survive. Endure. Repeat. As I reach up and feel my wet cheeks I know what I feared all along was true. My soul is in love with the idea of true love and I am far too jaded to play along anymore. As I am now as alone as some days I feel, I have the ability to do as one does when this sort of thing happens. For now I will recoil to the darkness that stalks me as it is always the same, always safe no matter how bad it is for me. Never lost I glide through the darkness until I catch the corner of a dresser. I open the top drawer and slide the shard into it, gently. I close the door and let the darkness absorb me until I am no longer present in this moment.  Silence. Endure. Survive. Repeat.

Cover reveal of Keren Hughes debut novel, Stolen


I’m super excited to be apart of the cover real of Keren Hughes’s book Stolen. She is an amazing woman who I met when I was searching for someone to review my first book Finding Alice. She is a breath of fresh air and I know from speaking to her on many occasions that her book will be outstanding and breathtaking. Yes I do have that much faith as I was able to read a small fraction of the book while she was still writing it! So check out the beautiful cover that I know will make you want to read it as much as I do!

— 

Keren Hughes

Author of Stolen, book one in the Freedom of Souls series.
Owner of ‘Gothic Angel Book Reviews’ book blog.

— 

Keren Hughes

Author of Stolen, book one in the Freedom of Souls series.
Owner of ‘Gothic Angel Book Reviews’ book blog.
There it is folks! Make sure to check out her links and tell her I sent you! 
XO

Personal journal entry

Here is an entry from my private journal. Honestly it’s on the lighter side, not sure what that says about my inner struggles.

October 2013:

I feel as if I’m floating through a sea of shadows. My mind is as tired as my body. I try to find the lighter side of things but the irritation of doing so is nauseating. I dream sometimes of a little house with an ocean view on a private beach where my mind can finally relax and I can enjoy my time here in this world. I dream of a body I feel comfortable in with no self loathing. Sadly, all of these things aren’t real and they leave me longing until I break down from the loss of something I never even had. As I cycle through waves of yet another bipolar episode I reach acceptance if only for a short period of time. Acceptance for who I am, baggage and all. For who I’m not and never will be. Allowing myself to dream even if it will never come to pass. I float between angry, depressed and a calmness I refer as the calm before the next storm. I wonder if I have the right to want more for myself. I try to be thankful for those moments of eerie calmness and quiet contemplation. It’s always so difficult to do so as I know if I wait a few hours, a day, days even I’ll be back to singing the blues and crying myself to sleep. My wonderland is a wasteland for broken souls. Once again the calmness before the storm settles on my skin like an itch I just can’t scratch. I will always continue to fight this nearing episode with what little strength I have. The air is crisp and inviting me to soak up the sun. As if the darkness wasn’t calling out to me. It’s moments like this I crave to be alone, yet a piece of me reaches out to those I love for comfort, for acceptance. The things I love to do hold less meaning in times like this. A hollowness erupts inside of me, taunting my rage and sadness. There’s no real rhyme or reason to feel this way. I know my life is far from horrible. Like a warm blanket the darkness comforts me as it usually does, inviting me to let go and cry about everything and nothing at all. The sad truth for me is, this battle is everlasting. Light may win today but as a new day dawns the fight starts over. I sit in shambles of a former version of myself. Oddly with hope that it will all be over soon and I will yet again bask in the light and enjoy a fragment of this life. How have I become such a jaded and cynical creature? I sigh deeply and prepare for another drop into sadness and utter grief. As if each time a piece of me dies I must mourn the loss. With shock plastered across me I can admit I am far better now with these modern poisons than many moons ago when I laid adrift in my depressing solitude. I accept this fate as much as I fight it. Always hiding this enormous side of myself from everyone. Knowing they couldn’t take it, knowing I couldn’t take that look upon their face or their response as heartfelt as they meant it to be. It feels as if I am living two lives all of the time. Except once in a while, like a full moon, where both sides of me collide and the true version of what I’ve become comes into full view. I don’t always hate her, the girl looking back at me. Though her voice is like poison in my mind. I would never wish this inner struggle on a single soul, it is far to cruel. Yet the calmness washes over me carrying a wicked grin. Even it sees what comes next. It feels pleasure with a nearing episode and yet it feels sorry for me too. I stare into the dark night’s sky wishing this episode would pass me by for once. So hopeful in my suffering. Now that is blind faith. Ridiculous as any other. I am but a shadow dancing through my life. And to be whole is but a dream.

Andrea
XO