Today was a hard day

Today was a hard day. Days similar to today have tried to break me and sometimes I think where I find my strength is keeping it all deep inside of me wrapped up tightly with all the other things I bury for the sake of others.

I often write about how being bipolar feels to me. How depression binds me. I tend to shy away from sharing the part of what it is I actually go through to heal, to survive. The experiences themselves I hide only showing the pretty words strung together in a useable quote. To protect myself, to protect other’s maybe. Not today. Today I had to start over with a re-assesment of my mental health and well-being. I have come quite far from when I started my self-care just over five years ago. Yet, I cannot seem to do more than survive. 

I walked into the office feeling the same I do most days though it’s hard to describe. I mostly go through the motions of what needs to be done to get to the next day only to repeat the cycle. Lying to my brain that tomorrow, we can breathe, we can relax, we can have a good day and maybe we can do something we want to do without criticism, without guilt, without a time limit as my time has not been my own for such a long time now. So, I walk in and sit down and BamBam the therapy dog climbs up his giant stairs onto my psychiatrist’s desk and sits right in front of my face waiting for his pets.

Isn’t he adorable? So sweet and seemingly concerned of my well being. Throughout the session I would watch this look overtake my doctor filled with sadness, concern and so much empathy for what it is I endure. I was uncomfortable, I didn’t understand why? It seems that look is gone from so many familiar faces it was unrecognizable. Conditioned that what I endure is not as bad as it feels or not as severe because I am strong, because I survive, because I am a talented actress and the best performance of my life, is my life and because I am shown that I am selfish making such an experience feel unworthy. I fought tears during the 90 minute season as if crying was painful, or not allowed but really when I start I often cannot stop. Sure sometimes I want to be held, in silence but mostly I prefer these moments are when I am alone. I feel myself betraying myself by doing such a thing in front of another human being. Every part of my being screams to stop, Stop, STOP! I do temporarily, at least until she pokes another trigger.

I have control issues. Anytime I have “let go,” the consequences have been astronomical and I carry them always. They are as much a part of me as my bones, skin and blood is. The things that break me in session, are the same things that have been slowly killing me, making me sicker physically and mentally. It is part of who I am, to feel everything so intensely or feel nothing at all. I’m not really sure if that is part of my personality at this point or just a combination of Bipolar Disorder and all the other labels slapped on my chart. The main triggers, are naturally things I am not in control of. I drift while she types, watching BamBam now in his tiny dog bed, belly up and snoring louder than something so small should be able to. The third time she mentions how difficult my situation must be due to my son’s autism, I correct her firmly. “He is not a trigger.” My love for him and his for me is unconditional. WE accept each other exactly as we are. No one else does that. Maybe that is why the bond between mother and son or father and daughter seem to be so strong. I explained and she accepted.

After adding another diagnostic issue to my chart she asks cautiously if I would be wiling to see a trauma therapist. (Meanwhile I can still see my regular therapist.) Now of course how far I’ve come seems minuscule at this point. She says something along the lines of, “I know to you, you may not think what you have experienced is trauma but it doesn’t have to be physical to be considered trauma. You show classic sign of PTSD from the trauma you have experienced (specifically these 2 instances, including the sudden seemingly random onset of your disorder almost 18-19 years ago) and you have been in survival mode ever since.” My eyes filled quickly and suddenly. So much truth is, hard. I answer her questions, telling her things I would never tell another soul (but I want to feel better, so I do.) Telling her things I have told other’s but had received no reprieve or true help besides empty words, disinterest, judgment, etc. Blah, blah, blah.

We make a plan of action, the best we can with the hand we are dealt. BamBam wakes and comes over to me to say his goodbyes. I leave physically exhausted, mentally drained. Today was a hard day.

I left to pick my son up from school and we went home. Continued with all the things I am supposed to do, have to do to survive. Did all the things I can muster the strength to do with a smile; so my son is happy, healthy and feels loved for being exactly who he is, every single part of him that makes him who he is and allowing him to exist the way he needs ands wants to. My turn isn’t a real thing. It’s a wish list my doctor has on my chart and on this list there are other things she wants for me that I won’t allow myself to dwell on, to want (when I can help it), knowing there is always a barter to be made for a fraction of what I may want and sometimes a punishment of sorts for thinking about myself. Fighting for things I should have a right to, well I do not have the energy, will power or time for such silly things.

Tomorrow I will feel a little better, until I don’t again. Back and forth. My mental illness is a neurological (and genetic) condition I did nothing to aquire and no longer can tell if I deserve. But don’t worry, in a few days I’ll gather myself and be back to the approved version I have been shown, I am allowed to be.

Today was a hard day.

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“I think the saddest people always try their hardest to make people happy because they know what it’s like to feel absolutely worthless and they don’t want anyone else to feel like that.”

― Robin Williams

Surviving with a Bipolar disorder diagnosis

Surviving with a Bipolar disorder diagnosis
I am not my illness. No matter how many disorders they slap on my chart, they do not define me. They do not own me. I can only take care of myself the best I can and hope for a little compassion on days it’s hard to get out of bed. Having been diagnosed with Bipolar Type I disorder; rapid cycling, was horrifying initially, but also a huge relief. All of the hardships I had endured over the years at times where there was little wrong in my life finally had a reason, an answer to the question, what is wrong with me?
Simply, it is a chemical imbalance in the brain that greatly affects mood and behavior. With extreme highs (mania) and extreme lows (depression.) It took three different doctors over the span of seventeen years to diagnose me correctly.
         Depression with or without the bipolar component is no laughing matter. It drags you down by your ankles and holds you under water. You may feel as if you’re drowning but it won’t seem to end and you want it to desperately.
I will tell you from experience, “Why can’t you just be happy?” Is the cruelest sentence one human being can say to someone who suffers from depression. We do suffer. To me, it has its own identity living inside of me. I call it, the Darkness. Similar to Dexter’s Dark Passenger, I suppose. (Except for the entire murder part of course.) I don’t know if labeling it is healthy for everyone or not but it gave me some power over it.
Every human being is unique therefor no treatment is one size fits all. Don’t give up hope.  I suffered without treatment for fourteen years. It took three years of treatment and a lot of trial and error to find what worked for me.  Finding a psychiatrist I could feel comfortable with and trust was the biggest step in my recovery. Though I should use the term maintenance as all people who suffer from bipolar disorder will in fact relapse. (This is not failure. Pick yourself back up and keep trying to feel better, to be better.) With proper treatment, often through medications (commonly a combination of mood stabilizers, anti-depressants, anti-psychotics and “talk” therapy,) these relapses can be less often and less intense in nature. There are many treatments out there. The key is working with your doctor to find what works for you, as not all will. I personally work with an Integrative Holistic Psychiatrist, (combination of alternative and conventional care.) For me this was the only thing that worked. Stay strong.

Remember, you are not alone. I am not alone. Say it with me.

Personal journal entry

Here is an entry from my private journal. Honestly it’s on the lighter side, not sure what that says about my inner struggles.

October 2013:

I feel as if I’m floating through a sea of shadows. My mind is as tired as my body. I try to find the lighter side of things but the irritation of doing so is nauseating. I dream sometimes of a little house with an ocean view on a private beach where my mind can finally relax and I can enjoy my time here in this world. I dream of a body I feel comfortable in with no self loathing. Sadly, all of these things aren’t real and they leave me longing until I break down from the loss of something I never even had. As I cycle through waves of yet another bipolar episode I reach acceptance if only for a short period of time. Acceptance for who I am, baggage and all. For who I’m not and never will be. Allowing myself to dream even if it will never come to pass. I float between angry, depressed and a calmness I refer as the calm before the next storm. I wonder if I have the right to want more for myself. I try to be thankful for those moments of eerie calmness and quiet contemplation. It’s always so difficult to do so as I know if I wait a few hours, a day, days even I’ll be back to singing the blues and crying myself to sleep. My wonderland is a wasteland for broken souls. Once again the calmness before the storm settles on my skin like an itch I just can’t scratch. I will always continue to fight this nearing episode with what little strength I have. The air is crisp and inviting me to soak up the sun. As if the darkness wasn’t calling out to me. It’s moments like this I crave to be alone, yet a piece of me reaches out to those I love for comfort, for acceptance. The things I love to do hold less meaning in times like this. A hollowness erupts inside of me, taunting my rage and sadness. There’s no real rhyme or reason to feel this way. I know my life is far from horrible. Like a warm blanket the darkness comforts me as it usually does, inviting me to let go and cry about everything and nothing at all. The sad truth for me is, this battle is everlasting. Light may win today but as a new day dawns the fight starts over. I sit in shambles of a former version of myself. Oddly with hope that it will all be over soon and I will yet again bask in the light and enjoy a fragment of this life. How have I become such a jaded and cynical creature? I sigh deeply and prepare for another drop into sadness and utter grief. As if each time a piece of me dies I must mourn the loss. With shock plastered across me I can admit I am far better now with these modern poisons than many moons ago when I laid adrift in my depressing solitude. I accept this fate as much as I fight it. Always hiding this enormous side of myself from everyone. Knowing they couldn’t take it, knowing I couldn’t take that look upon their face or their response as heartfelt as they meant it to be. It feels as if I am living two lives all of the time. Except once in a while, like a full moon, where both sides of me collide and the true version of what I’ve become comes into full view. I don’t always hate her, the girl looking back at me. Though her voice is like poison in my mind. I would never wish this inner struggle on a single soul, it is far to cruel. Yet the calmness washes over me carrying a wicked grin. Even it sees what comes next. It feels pleasure with a nearing episode and yet it feels sorry for me too. I stare into the dark night’s sky wishing this episode would pass me by for once. So hopeful in my suffering. Now that is blind faith. Ridiculous as any other. I am but a shadow dancing through my life. And to be whole is but a dream.

Andrea
XO