Archive: The joy of a sleepy child

I rock my son in my arms as if we were listening to a sweet melody. His cries bounce of the wall begging for me not to coax him into sleeping. He loathes napping and bedtime as if I were kicking his favorite little puppy. He whines, pleading that I stop trying to make him as sleepy as he actually is. I lay him down in bed with a bottle and his favorite blanket, whispering sweet words to him. He fights, arguing every step of the way as if sleep was his mortal enemy. His eyes grow heavy and in reaction his hand reach up to rub them. Will he sleep? I wonder.

I hold my son gently in my arms reminding myself that this is just one of the many gifts that come along with children. Exhausted my hair lay a disaster, high above my head. My eyes are surrounded by a dark blanket, a sign that I have been without sleep for far too many days in a row. A nap could change my entire day and the only thing standing in the way of that is the perfect bundle of joy wrapped in my arms screaming bloody murder. My socks are mismatched and I was sure the substance on my shirt was either spit up or formula but not entirely sure to which one it was.  Reluctantly, I lay him in his bed as my arms feel as if they will fall right off of my body from the length of time I held his weight in them. I tried to hold him until he fell asleep, but I was in no condition for an endurance run against this little man.  I glanced in the mirror to see my disheveled appearance knowing this wasn’t the first nor the last time, I wasn’t going to give two shits about my reflection, mocking me. I sat waiting for him to tire himself out and fall asleep into the much needed nap he deserves, I deserved. As I am just about to give up and free him as he wishes the space around me silences and I know he has finally passed out. I dance in celebration. I debate on taking my own much needed nap or one of the other million things I could do while he lay sleeping. I peer into his crib to see his sweet angelic face, at peace. I crawl into bed and close my eyes, excitedly. Minutes pass and there I lay awake. “No, no, no.” I growl at myself. After I had made a mental note of my future to do list and had dwelled sufficiently on the past twenty-nine years of my life, I begin to drift asleep. “Momma.” I hear from cage that holds my son. My eyes snap open fearfully and as his soft voice begins to babble I sigh and pull myself from my bed and approach my son. I find him siting, staring up at me with a smile that could melt the coldest of winter’s. Even his baby blues were smiling, as if to say, thank you mom. I needed that. I reach in and lift him up into my arms and he holds on to my neck before I bring him to the floor to escape and cause whatever havoc he will, on the house. His laughter fills the house as he plays with his favorite toys and though the circle’s around my eyes darkened slightly from the ordeal I throw my hands up in defeat. There’s always bedtime, I think to myself. Who needs showers?

 

Drea

This is what depression looks like

This is what depression looks like:

© Andrea DiGiglio
© Drea DiGiglio
This is what depression feels like (to me anyway.)
It’s more than the really bad days of not being able to get out of bed. The idea of getting out of bed is exhausting. Not showering for days on end and not giving a rat’s ass about it. Not eating for days or perhaps the opposite and shoveling food mindlessly and probably guilt tripping yourself for it every step of the way. Its not just the days where you cannot muster the strength to get out of bed. It’s the days where you feel like that but you do get out of bed, too.
If you have kids, you still have to get them ready for school and take them to their appointments. Sure, maybe your in sweats instead of actual clothes but who cares. You clearly don’t. If you work, you work. You don’t socialize, you don’t count the minutes. You just work and you’re not entirely sure if you’re grateful it’s over because you hate working but now what the fuck are you going do with your time? Every activity takes effort. Every activity. The world looks as if it is tinted in a lower temperature color. Food doesn’t taste as good. You drink, whether it’s to be numb or shut the noise in your head up or just to feel, settled. Or perhaps some other alternative to cope.
Your body and you argue. You’re sore for no reason or just tired all of the time. Or both.
At first you say how you feel. Then you feel like a burden. Maybe you are. Maybe you aren’t. You take care of everyone except yourself because all you are trying to do at this point is survive. This is usually the point when people bring up the things you do (or don’t do) because you’re depressed, because you seem to always be depressed and yes you’re already aware of them. When people bring them up a feeling erupts, a cross between; feeling guilty and angry. Guilty for your behavior or lack there of and that they noticed and want you to know they noticed. Anger because you now feel as if your feelings are no longer valid and only their feelings are and why not just do it instead of making me feel bad about it because obviously on this day I am struggling?
People who love you try to understand and maybe they really do. But let’s be honest it’s annoying when a family member isn’t contributing or is grumpy, sad or angry all of the time.
So you stop saying how you feel. It’s too hard to continuously repeat yourself and it’s not going away, it just keeps coming back. So you smile. You laugh. You try to, fake it till you make it.
Then people like us see these smiling photos stream across social media. Smiling, happy. All the while suffering. Enduring. Fighting. They don’t know they aren’t alone.

So, apparently. This is what depression looks like. We put makeup on so we can feel normal, look normal and maybe to fake it. Maybe it’s so the people in our lives will stop asking if we are okay because no, we are not okay. Maybe we don’t wan’t the shame and guilt of feeling how we feel. Maybe we are just too damn depressed to have another conversation about it. Today I am not okay and that is okay. Just maybe, tomorrow I will be and that smile might be real. If it’s not? I suppose you might not really be able to tell because we live in a world where those who carry the burden of a mental illness feel like a burden. It’s not just the words people say it’s their actions time and time again. Actions which do not say, “I understand you are suffering.” Rather say, “When will this end this time so the ‘real you’ will be back” (For them.) The longer someones struggle is with their disorder, the longer they suffer. The less patient I find people to be. It’s a sad world I find us to be in. Where those who always have the kindest of hearts are often the most broken.

Much love to you all, be kind to one another. Keep fighting through the darkness and know you are worth fighting for, your life is worth fighting for. The good days are worth it. Don’t give up.

XO
-Andrea

Love and Autism

I love my son more than I thought was ever possible. From the moment I found out that I was pregnant my life changed forever. When I first saw his steel baby blues looking up at me I was swimming in his love. We had a terrible scare when he was only a month old resulting in him needing surgery on thanksgiving day of 2010. I was a wreck, there was nothing I could do to ease what he was going through and he was too young to explain that everything would be okay, and it was. I remember the first time I played peek-a-boo with him not knowing at his age he would think I disappeared forever but in time he learned to love the game. I watched him hit milestones so proudly all while terrified if I was doing all I could for him. One day I noticed, others noticed really, he wasn’t looking at us. Down the road I found out he has autism spectrum disorder. It was the second scariest experience of my life. He has made such amazing progress through early child development and autism programs. I love him, just the way he is. The way he laughs with every part of his being and smiles as if the world is the most amazing thing he’s ever encountered. Sure he won’t even try this sippy cup idea and loves his bottles as if they are the most important thing in the world, next to his IPad. His iPad that has shown us all how incredibly smart he is though he doesn’t have the words to tell us. He amazes me every day, and drives me crazy as toddlers do. Most days I am only grateful for the blessing he is in my life. Sometimes I see kids his age, tell their mother’s they love them and a piece of me cries for that moment. Its possible I may never hear those words from his lips. My new terrifying thought that wanders my mind. If he never does, he shows me, everyday. I know he loves me. So no, I’m not sad that he is autistic and please don’t aww and give me a pitiful look in response. He is amazing and I will continue to do all I can to give him all the tools he needs to exceed other’s expectations and reach incredible goals he has yet to set for himself. I will shower him with love and kindness so he knows how to treat others. I will set rules and boundaries for his safety and well being and not because I’m scared of the what if’s in life. Just as I was taught, I will teach him to be the best he can be and give him the room he needs to achieve it and the help when he wants it. It’s true when they say your children become your world. They are our world and one day they will be the ones running the world we live in. Isn’t it only fair we do all we can to make it the best possible life they can live? As he hands me his bottle requesting more with that breathtaking smile, I smile back and kiss his forehead. In that moment I feel his love and that is everything to me.

Proud momma