I’m Tired

I don’t remember the last time when I spoke the words “I’m tired,” and that was all I meant. Whether it was to someone or to myself. I’m tired has replaced I’m okay, I’m all right, I’m fine which often was retorted with, “Are you sure?” Sometimes followed with unsolicited advice which honestly was never much help in climbing out of that headspace. I’m just tired has replaced I’m exhausted. It’s replaced I’m sad, I’m depressed, I feel broken. It’s replaced I feel hopeless. I’m not sure at what point I am tired became so much more in those two words. It creeps in the darkness of the night stealing sleep or causing nothing but sleep. It has no shame on a warm sunny day and still keeps coming at you with clenched fists. Frankly, most times talking about how I feel traps me there and I want to escape it and I have therapists for that sort of thing anyway.

I suppose I may not just be tired and after so many years like this it feels as if this is who I am now. It’s not all days but it’s closer to that being true than not. Sometimes saying I’m tired, is to not burden those you care about with something you can’t help feeling. And after so much time has passed and those feelings are still there the compassion dissipates from the ones you need it from the most. It is not intentional to hurt but the truth is, sometimes it does.

Maybe I don’t have anything positive to say and I am a jaded, cynical pessimist. And life experiences and jacked chemicals in my brain created the monster I feel I am now. So no, I won’t complain about my day, the physical pain I’m in I try to ignore and fight through or for the mental warfare inside of my head just to be told to chin up or buck up or to play the one up game with people I’m not trying to compete with, especially a game where every one is the loser. To be asked how I am and for the response to my reply to feel like nothing more than a brush off, an obligation to ask but no substance behind it. And yes, I already know that someone else has it worse than me but I still have to live this life in this body, in this mind.

I miss truly enjoying things, things I used to or even new experiences or even something so simple as chasing after dreams. To be trapped in survival mode only because the chemistry in my brain is faulty. Some days, not all days, I go through the motions only to get to the next day and only to do it all over again like Bill Murray in Groundhog Day or Sammy in the “Mystery Spot” episode of Supernatural. But I haven’t given up yet and that should count for something shouldn’t it?

So yes, I’m tired.

 

Endure. Survive. Endure.

Endure. Survive. Endure.

I looked at the ground, my heart broke. It took a deep breath in and tried to retain all the pieces it seemed to be in now. It didn’t. It couldn’t but be damned it still tried. Sometimes in life you are sitting still as the world rushes by you. Others, you don’t have enough time for all the things you need and want to do. Sometimes you are in motion at a steady speed until something hits you like a boulder knocking your ass back to the start line. Similarly, I had been struck with a still force across my entire being. I mourn the loss of something dear to me and feel as though I always have and will again. So many times I have roared back to life and tried again and again to reach a goal I fear I will never achieve. In this, my illness wreck’s havoc on me as it is the only constant in my life. It is cruel and meticulous. The noise in my skull is chaotic most of the time, especially this moon phase. You fear the darkness but its deep within me and all around me and feels like, home.  Many don’t get it and I didn’t expect you too. Yet, I was hopeful. Something that has never, not one time, ever paid off. Time and time again, the girl who thought Westley and Buttercup’s story was what true love really was or could be, reminds who I am today of the possibility, it could. So incredibly cruel. Another cycle burns through the night and I play a game within myself of Dr. Jekyll and Mrs. Hyde. No matter who wins, this sliver of my heart in my hand cuts me, deeply. A reminder of what happened here as to never forget, as if I could. Another toke, another drink, another pill. Numb. Wanting numbness to take hold, to give ample time to heal before I feel. My will laid at the waste side, unable to help me now. Endure. Survive. Endure. Repeat. As I reach up and feel my wet cheeks I know what I feared all along was true. My soul is in love with the idea of true love and I am far too jaded to play along anymore. As I am now as alone as some days I feel, I have the ability to do as one does when this sort of thing happens. For now I will recoil to the darkness that stalks me as it is always the same, always safe no matter how bad it is for me. Never lost I glide through the darkness until I catch the corner of a dresser. I open the top drawer and slide the shard into it, gently. I close the door and let the darkness absorb me until I am no longer present in this moment.  Silence. Endure. Survive. Repeat.

Ramblings From an Unusual Mind

When nightmares feel all to real

Most of my nightmares consist of me running, forever it seems. Being chased or chasing someone or something. Thankfully in my dreams I have stamina and the endurance to keep running. I often wake up with my legs feeling sore at times. I also tend to get into these grand battles, always fighting. Winning some, losing others.

Last night this was not the case at all, there was no running or fighting. Just panic and blood. It felt so incredibly real it took several minutes this morning to come to terms with the fact it was not real at all.

 

*Warning: Not suitable for all ages*


THE NIGHTMARE
I did not feel well and I couldn’t really explain how but it was different than my everyday pain and mental & emotional struggles caused by the 8 x 11 page list of disorders I bare. My heart was racing, my stomach turning. I stared into the mirror in the bathroom attempting to rid the awful taste of something horrible about to happen, out of my mouth. I rinsed my mouth out with mouthwash and as I spit five teeth coated in thick blood mixed with Listerine, fell from my mouth into the sink with a clank which seemed to echo. I covered my mouth with a shaky hand, attempting to bare my weight on the counter with the other. I coughed, choking on the blood and in reflex spit more blood into the sink. Followed by more teeth. My eyes widened. I gathered the pieces of myself I had just lost and I ran out into the house barely audible saying, “ER, watch him.” Referring to my six-year-old son. An argument or barter system would have played out if the blood had not been all over the outside of my mouth, leaking out into my hands as I spoke.

I drove myself to the ER as I always did in such situations. Salt stinging my eyes, begging a being I don’t believe in and even hate not to let this be it. My son needs me. My mind screamed, pulling into the ER, nearly colliding with a parked car parked over the line as people who drive SUV’s and other large vehicles always seem to do. I stumbled out of the car and into the emergency room doors nearly collapsing on the security guard. He caught me and partially carried me to the check in desk. I attempted to check in but when I spoke my words were colluded with blood and more teeth flew into my hands. I could only painfully stare into the woman’s eyes with trembling lips. Begging for help through my glossy eyes.

They took me back steadfast and most of the doctors in the ER came to see my strange condition. A specialist of sorts with sleek blonde hair pulled back into a low ponytail, tugged at her white coat while examining me. Her demeanor was cold and she made no effort to ease my discomfort or mental turmoil. She walked away to speak with the attending claiming my “infection” of sorts was due to a drug I most likely injected. So much judgment leaked out of her skin. Injecting myself was something I had never done and as I attempted to explain no words fell from my lips, only red and white. Unfortunately the only way to treat this insatiable infection was to know the specific strain and I had taken no such injectable drugs. For a moment death would be imminent. I began to thrash unwilling to accept this carved out fate. They attempted to hold me down and as ordered searched my body for needle marks anyway. I tried to tell them but was unable to speak clearly and so while they searched my skin I wrote in my own blood on the white bed sheet, “no injections, only medical pot.” Something I use to treat my disorders.

At this point my family and friends had begun to start showing up at the ER demanding answers on my condition. It seemed to always take something extreme for a response of care by action and not only empty words. I am not sure who it was who was actually able to speak with the doctors and chose to race back to house I live in to find my “stash,” as the doctor called it. Maybe my lack of faith to believe someone would think to do so. By some wave of luck the medical team was able to test the contents to find one of the glass mason jars of marijuana was in fact laced with a deadly substance causing rapid decay in my body. They began inserting the treatment into my IV and I felt it burning inside of my skin. Now I needed major surgery to remove the infection in my mouth and replacing all of my now missing teeth. They claimed they were optimistic in which the infection hadn’t spread anything further. At this point, I was not.

Assuming the treatment was working, a elderly woman with a limp wheeled a computer on a cart slowly and a stack of paperwork since I could not speak, into my room as naturally I had to apply for a medical credit card to pay for the expenses before they would start anything as they already screened that my insurance would not cover the “cosmetic” tooth replacement.  I filled out the paperwork. Twice, because I kept dripping blood accidentally onto it.

I handed the paperwork to the woman, suddenly dropping on the edge of the bed clenching my stomach as a sharp pain followed by cramping erupted through me causing me to vomit. I puked up some strange large mass of sorts that I honestly thought was an organ I might need. Finally, the doctor decided to start the surgery regardless of the status of my potential medical credit line. She up’d the dose of the treatment as they rushed me down the hall.

It was a strange feeling watching them as I felt myself leaving myself in a way as they put some sort of mask on me to help knock me out while someone else injected me with something but from my point of view it just felt like the ice queen specialist was putting a pillow over my face to smother me and I wondered if that would be so bad? I choked trying to talk through that mess, trying to say my sons name. I tried to smack the bed to draw anyone’s attention to it but I’m sure it only looked as if I was tapping at what I had already written as they were wheeling me down the hall toward the OR. It read, “single mom, autistic son. All he has. Please.”

I woke up in the dream alive, in a panic after the surgery. Wanting to see my son, to hold him.

Immediately I shot out of my own bed, actually awake. Not sure if I was in reality or not. Not realizing for a while that I had been dreaming all of those horrible moments.

Unsure which was worse.

Today was a hard day

Today was a hard day. Days similar to today have tried to break me and sometimes I think where I find my strength is keeping it all deep inside of me wrapped up tightly with all the other things I bury for the sake of others.

I often write about how being bipolar feels to me. How depression binds me. I tend to shy away from sharing the part of what it is I actually go through to heal, to survive. The experiences themselves I hide only showing the pretty words strung together in a useable quote. To protect myself, to protect other’s maybe. Not today. Today I had to start over with a re-assesment of my mental health and well-being. I have come quite far from when I started my self-care just over five years ago. Yet, I cannot seem to do more than survive. 

I walked into the office feeling the same I do most days though it’s hard to describe. I mostly go through the motions of what needs to be done to get to the next day only to repeat the cycle. Lying to my brain that tomorrow, we can breathe, we can relax, we can have a good day and maybe we can do something we want to do without criticism, without guilt, without a time limit as my time has not been my own for such a long time now. So, I walk in and sit down and BamBam the therapy dog climbs up his giant stairs onto my psychiatrist’s desk and sits right in front of my face waiting for his pets.

Isn’t he adorable? So sweet and seemingly concerned of my well being. Throughout the session I would watch this look overtake my doctor filled with sadness, concern and so much empathy for what it is I endure. I was uncomfortable, I didn’t understand why? It seems that look is gone from so many familiar faces it was unrecognizable. Conditioned that what I endure is not as bad as it feels or not as severe because I am strong, because I survive, because I am a talented actress and the best performance of my life, is my life and because I am shown that I am selfish making such an experience feel unworthy. I fought tears during the 90 minute season as if crying was painful, or not allowed but really when I start I often cannot stop. Sure sometimes I want to be held, in silence but mostly I prefer these moments are when I am alone. I feel myself betraying myself by doing such a thing in front of another human being. Every part of my being screams to stop, Stop, STOP! I do temporarily, at least until she pokes another trigger.

I have control issues. Anytime I have “let go,” the consequences have been astronomical and I carry them always. They are as much a part of me as my bones, skin and blood is. The things that break me in session, are the same things that have been slowly killing me, making me sicker physically and mentally. It is part of who I am, to feel everything so intensely or feel nothing at all. I’m not really sure if that is part of my personality at this point or just a combination of Bipolar Disorder and all the other labels slapped on my chart. The main triggers, are naturally things I am not in control of. I drift while she types, watching BamBam now in his tiny dog bed, belly up and snoring louder than something so small should be able to. The third time she mentions how difficult my situation must be due to my son’s autism, I correct her firmly. “He is not a trigger.” My love for him and his for me is unconditional. WE accept each other exactly as we are. No one else does that. Maybe that is why the bond between mother and son or father and daughter seem to be so strong. I explained and she accepted.

After adding another diagnostic issue to my chart she asks cautiously if I would be wiling to see a trauma therapist. (Meanwhile I can still see my regular therapist.) Now of course how far I’ve come seems minuscule at this point. She says something along the lines of, “I know to you, you may not think what you have experienced is trauma but it doesn’t have to be physical to be considered trauma. You show classic sign of PTSD from the trauma you have experienced (specifically these 2 instances, including the sudden seemingly random onset of your disorder almost 18-19 years ago) and you have been in survival mode ever since.” My eyes filled quickly and suddenly. So much truth is, hard. I answer her questions, telling her things I would never tell another soul (but I want to feel better, so I do.) Telling her things I have told other’s but had received no reprieve or true help besides empty words, disinterest, judgment, etc. Blah, blah, blah.

We make a plan of action, the best we can with the hand we are dealt. BamBam wakes and comes over to me to say his goodbyes. I leave physically exhausted, mentally drained. Today was a hard day.

I left to pick my son up from school and we went home. Continued with all the things I am supposed to do, have to do to survive. Did all the things I can muster the strength to do with a smile; so my son is happy, healthy and feels loved for being exactly who he is, every single part of him that makes him who he is and allowing him to exist the way he needs ands wants to. My turn isn’t a real thing. It’s a wish list my doctor has on my chart and on this list there are other things she wants for me that I won’t allow myself to dwell on, to want (when I can help it), knowing there is always a barter to be made for a fraction of what I may want and sometimes a punishment of sorts for thinking about myself. Fighting for things I should have a right to, well I do not have the energy, will power or time for such silly things.

Tomorrow I will feel a little better, until I don’t again. Back and forth. My mental illness is a neurological (and genetic) condition I did nothing to aquire and no longer can tell if I deserve. But don’t worry, in a few days I’ll gather myself and be back to the approved version I have been shown, I am allowed to be.

Today was a hard day.

_____________________________________________________________________

 

“I think the saddest people always try their hardest to make people happy because they know what it’s like to feel absolutely worthless and they don’t want anyone else to feel like that.”

― Robin Williams

Cinderella isn’t Dressed in Yellow, She’s Dressed in Black and She’s Depressed

© RussTurnerphotography
Cinderella isn’t dressed in yellow. She’s dressed in black. And she’s depressed, in pain, ill and exhausted but still getting the damn job done. She’s on mood stabilizers that don’t help nearly as much now that she quit smoking cigarettes. She doesn’t live with step relatives but blood and her dad isn’t dead but he’s not there. Her time doesn’t belong to her and if she attempts to steal any of it she is punished for being selfish. When she asks for help there’s always a price to be paid. Prince Charming brings her home (back to the house) at midnight when she can get a sitter. She sleeps a lot or not at all. She forgets to eat. She’s dying and she doesn’t even care anymore. All they think is, how selfish what about me?

© Andrea DiGiglio